Safety recommendation
HSIB recommends that NHS England specifies a palliative and end of life care data set to help integrated care boards to understand their populations’ demographics and needs, in order to support commissioning and improvement of services.
Response:
As with Joint Strategic Needs Assessment (JSNA), Integrated Care Boards (ICBs) are free to understand their populations’ demographics and needs in a way best suited to their local circumstances. There is no template, format or mandatory data that must be used. As with JSNAs, a range of quantitative and qualitative evidence is encouraged for a detailed understanding of population need. There are a number of data sources and tools for quantitative data. These were listed by NHS England in their response. Qualitative information can be gained via, including but not limited to, co-production, surveys and events with people with lived experience.
Updated response:
Since the initial response, NHS England has worked to recommission an ICB-level dashboard that pulls together relevant data streams from primary and secondary care. This enables ICBs to better understand their population needs and to help plan services in their footprints. The data can be manipulated to explore aspects relating to service lines, service utilisation, population information, etc. Funding to renew the data quarterly for 2024/25 has been confirmed. The dashboard is available on the FutureNHS Collaboration Platform.
Response received on 6 October 2023 and updated on 26 July 2024.