Undiagnosed cardiomyopathy in a young person with autism

From the investigation: Undiagnosed cardiomyopathy in a young person with autism

Recommendation date:

Safety recommendation

It is recommended that NHSX develops a system for sharing care plans for patients with autism, learning disabilities or learning difficulties to enable reasonable adjustments to be made. It is recommended that NHSX develops a standardised care passport, which should include sections to support patients with autism, learning disabilities or learning difficulties.

Response:

We acknowledge and agree with the report’s recommendations

In response to this report we are planning to conduct some discovery work over the coming months to look at requirements, potential solutions and guidance to enable patients with learning disabilities to be flagged, care plans shared and care passports used to empower patients and their carers.

We are aware of some areas of good practice across providers and will seek to include the learning in our work.

There will be information governance and integration issues to overcome which we will, of course, work through in partnership with provider organisations.

Response received on 12 October 2020.

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