Safety recommendation
HSSIB recommends that NHS England, with support from key stakeholders including the Professional Record Standards Body, works collaboratively to develop and publish a set of guidelines on information to be included in a health and care passport (which could be paper based, digital, or both) for people with a learning disability with consideration of the reasonable adjustments that people may need. This is to ensure the most current and accurate information about reasonable adjustments to the person’s care is accessible when and wherever it is needed.
Response:
We have established a national task and finish group with representatives from Integrated Care Boards (ICBs), NHS trusts and people with lived experience of learning disability and autism in order to create a template health and care passport with accompanying guidance for ICBs to support implementation. The passport template is based on the About Me standard, from the Professional Records Standards Body.
The passport is designed to complement information held on a patient care record’s Reasonable Adjustment Digital flag. There are three stated aims for the guidance:
- Improve confidence in health and care passports by clinicians and other health and care professionals.
- Improve use of health and care passports by people with a learning disability and autistic people.
- Improve the “portability” of health and care passports so that if an individual needs to access health and care outside of their home area the document is recognised and utilised.
Response received on 2 February 2024.